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NuGenA (Nurse Led Genetic Counselling and Awareness): A proof-of-concept to implementation of genetic counseling for HBOC in LMICs.

Author Affiliations
Calcutta Research Group, Chittaranjan National Cancer Institute, King George's Medical University, Cancer Institute (WIA), ...
Published InJournal of Clinical Oncology
Year2025
Citations1

Abstract

10583 Background: Poor access to genetic testing and counselling represents a major gap in cancer care in resource-restricted-settings. Our pilot work in Eastern India (2017-2019) demonstrated improved uptake of BRCA genetic testing (89% vs.55%) in ovarian cancer (OC) after training one nurse specialist in genetic counselling. We introduced NuGenA program in 2020 to scale-up this effort as proof-of-concept. Methods: Ethical approvals were obtained (KolGo/CTRI/2021/06/034308/HMSC). A nurse-led structured training program combining lectures/modules/live-demonstration-workshops/role-playing using offline and virtual learning methods were administered to sensitize/train all tiers of nurses including train-the-trainers in genetic counselling. A comprehensive NuGenA questionnaire including demographic, family history, CAM, pre/post-test counselling satisfaction-regret scale, QOL and willingness-to-pay (WTP) for genetic testing was administered by trained nurses. Physician and nursing interviews were…
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