Patient advocacy and support groups in India: focus on lung cancer

Globally, patient advocacy and support groups have helped advance science and patient care, however, this is an unmet need in India. In 2017, Rise To Survive, a support group for patients with ALK-positive lung cancer, was created in India.1https://risetosurvivecancer.com/2018/09/05/alk-positive-india-indias-1st-patient-support-group-dedicated-to-lung-cancer-also-1st-mutation-level-support-group-in-any-type-of-cancer-in-india/LastDate accessed: January 9, 2024Google Scholar In 2018, a few advocates, patients with lung cancer, caregivers, and survivors came together to form, “Lung Connect India Foundation”–a support group, aimed to empower patients with lung cancer and their families, through information, resources, and support. During India's countrywide COVID-19 lockdown in 2020,2Noronha V. Shah D. Mokal S. et al.Deviation from standard cancer treatment during the first wave of the COVID-19 pandemic in India: a cross-sectional study.Cancer Res Stat Treat. 2022; 5: 212-219Crossref Scopus (9)…